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How is the campaign that seeks to create a real-time database on people with Down syndrome

The Numbers Syndrome is a problem that makes this specific group of the population invisible and the only way to change this reality is by gathering information

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How is the campaign that seeks to create a real-time database on people with Down syndrome

Wunderman Thompson Argentina and ASDRA – Down Syndrome Association of the Argentine Republic- presented a campaign that seeks to collect information to create the first dynamic database updated in real time on people with Down syndrome.

As they warn, in our country, there are no updated official data on the population of people with Down syndrome; And without data, there is no information for the State to recognize them and guarantee their rights, as required by the International Convention on the Rights of Persons with Disabilities.

That is what the Numbers Syndrome is about, the invisibility of these people because they do not have precise figures, it has existed for many years and mainly conditions people with Down Syndrome from birth, making them invisible. Because Down syndrome does not condition their lives, but Numbers Syndrome does. In addition to the aforementioned, in our country, as there are no updated official data and as a consequence of this, the State does not have information to take measures that recognize them, or create public policies that guarantee their rights, as required by the International Convention on the Rights of Persons with Disabilities.

From ASDRA, they are creating the first dynamic database of people with Down syndrome in Argentina, which collects, updates, and classifies all their information in an intelligent way, developing statistics and making visible the problems they experience, to generate demands in real time aimed at the bodies responsible for solving them.

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The Invisibility Of These People Exists Due To The Lack Of Precise Figures

The Syndrome of Numbers campaign will be broadcast on social networks, public roads, graphics, radio, a website, and a WhatsApp chatbot so that people with Down syndrome and their families join from all over the country and give visibility to those who do not yet have it. The dynamic website will classify intelligently and develop statistics, in order to generate demands in real-time directed to the organizations responsible for solving them.

” We consider that this support tool will make an important contribution to guarantee the fulfillment of the violated rights of people with Down syndrome, since it will offer data and statistics in real-time accessible to all actors in society, including the State, ” he said. the President of ASDRA, Alejandro Cytrynbaum . And he added: “We also hope that in the next Census 2022 this population will be incorporated into the questions, to finally access official data that speak about it.”

SindromeDeNumeros.com has the support of the Down Syndrome International of the United Kingdom and different spokespersons, in the search for the inclusion of excluded groups in the country’s statistics.

“In Argentina, there are no official data about people with Down syndrome. And without these numbers, there are no rights. That is why we are creating a tool to generate continuous demand and help through creativity and technology to change this reality and a system that needs to evolve”, added Laura Valle and Sofía Cursach, Creative Directors of Wunderman Thompson Argentina.

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According to the United Nations (UN), Down syndrome has always been part of the human condition, exists in all regions of the world, and usually has variable effects on learning styles, physical characteristics, or health.

“Adequate access to health care, early intervention programs, and inclusive education, as well as adequate research, are vital for the growth and development of the person,” says the international body.

In December 2011, the General Assembly designated March 21 as World Down Syndrome Day. With this celebration, the General Assembly wants to generate greater public awareness of the issue and to remember the inherent dignity, worth and valuable contributions of people with intellectual disabilities as promoters of the well-being and diversity of their communities. It also wants to highlight the importance of their individual autonomy and independence, in particular the freedom to make their own decisions.

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The Un Wanted To Highlight By Designating March 21 As World Down Syndrome Day The Importance Of Their Individual Autonomy And Independence, In Particular The Freedom To Make Their Own Decisions

Down syndrome is a genetic disorder caused by the existence of extra genetic material on chromosome 21 that results in intellectual disability.

The estimated incidence of Down syndrome worldwide is between 1 in 1,000 and 1 in 1,100 newborns.

People with Down syndrome tend to have more general health problems. However, social and medical advances have managed to improve the quality of life of people with the syndrome. At the beginning of the 20th century, those affected were expected to live less than 10 years. Now, about 80% of adults who suffer from it are over the age of 50. Medical and parental work at an early age favors the quality of life and health of those who suffer from this genetic disorder by satisfying their health needs, which include regular check-ups to monitor their physical and mental development, as well as a timely intervention, as to be it with physical therapy, inclusive special education or other community-based support systems.

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    Written by Christina d'souza

    Proofreader, editor, journalist. I have been doing my favourite thing for more than six years.

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